Hello friends! Thank you so much to anyone who read my post from last night and thought of me and/or prayed for me.
My appointment went well this morning and I’m feeling very proud of myself for going.
“Courage is being scared to death but saddling up anyway.” -John Wayne (according to the internet. LOL. I read this quote in college in a planer I had and have always loved it).
Today I talked with my doctor about a plan of action for the next few months, had some blood work done, and have instructions to meet with my primary care physician for some additional blood work.
My doctor found an interesting detail looking back through my blood work history (back from November 2011). At that time I was having my 2nd miscarriage and was in the hospital with low platelets. I was eventually diagnosed with ITP but my platelet levels rose over the course of two months with a treatment of prednisone and have been in remission since January 2012. Honestly, I wonder if I actually have ITP or if the low platelets were just related to that pregnancy. I know some people with ITP have said they had a one time issue with low platelets, then went years in remission before having a problem with low platelets again. It’s always in the back of my head wondering if it will someday become a problem.
Anyways, back to the interesting detail my doctor noticed today. I had a positive ana blood test during my week in the hospital. I was never told about this and my doctor thinks they dropped the ball in not doing follow up blood work. I’m really surprised that the hematologist did not continue to follow up on the ana blood work. I do remember the doctor’s specifically telling me that I did not have lupus (it’s common for people with low platelets to have lupus). I’m confused by why they would rule out lupus when I had a positive ana test. Also, from what I’ve read online, lupus is something they test for over a period of time. A negative result does not necessarily rule out the disease nor does a positive result indicate you have the disease.
I’m frustrated by all of this, but I suppose looking back and being angry doesn’t change anything. Onward we go, and from now on, I need to be more proactive in my health care. Thankfully, my health care system now has an online medical chart where they post all of my blood work results, exam results, and so on. That should make it significantly easier to understand what’s happening with my treatment. And they have a cool feature where you can send messages and questions to your doctor so I love that I can look through all of my blood work results and be able to message my doctor with questions.
I’m going to my primary care physician to have them check out the ana situation. She said it’s something that really has to be tested over time, with history of symptoms and so on. Not a one time test without a follow up. She said my doctor will either go ahead with that testing or just refer me to rheumatology.
My doctor thinks that autoimmune disease might be contributing to my recurrent miscarriages. We will work through some more blood testing and then she’ll discuss what we can do for treatment if we find that to be the case.
I’m going back next week for an ultrasound to look at the lining of my uterus. In late February or March, I’m having a HSG done. I had the option to do the HSG after our first 3 miscarriages, but it was so darn expensive (our insurance did not cover it at all) and I really didn’t think there was a need for that test. I still think it’s going to be a waste of money, but, because I want to cover all my bases, we will go forward with it now to be 100% sure.
It feels good to be taking these next steps after our miscarriage in December. I didn’t think I would be ready to talk about pregnancy related issues, but it feels good to know I’m taking care of my health. I really, really feel like God opened doors for me to lead me to answers. There’s anxiety with moving forward, but I also have so much hope that I’m not walking forward without purpose.
With all of that said, thank you so much to all of you for your thoughts and prayers and love. I know that I previously said I wasn’t sure how much blogging I would do going forward, but over the last month, with much prayer and thoughtful consideration, I have determined that I want to continue blogging and sharing about our journey.
I love this community of support and so appreciate all of you for reading and sharing your own stories of trials, loss, hope, and victory.
P.S. I hope this post makes some kind of sense. I didn’t sleep very well last night and I’m thinking it’s about time for a nap 🙂